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dysreflexia and support groups
9/26 9:48:45

Question
I'm a long term c7-t1 quad. I have chronic dysreflexia related to rectal issues. I don't get the high blood pressure or other issues just debilitating sweating. My colon Dr. says there are some hemorrhoids but nothing remarkable. I've had issues managing my bowls for much of my 21 years injured. stool softeners have not worked for me.  The only reliable method I found to reliably empty my bowl has been using the shower head to perform enemas. To combat the sweats I've been using propantheline. The dosage has increased to be effective to the point that it sometimes takes 60mg to calm the sweats. I'm often unable to leave the house because I'm dripping in sweat. I've battled unpredictable bowl movements and constipation for many years. It has gotten to the point to avoid trauma to my rectum and regulate my bowl program I'm giving serious consideration to getting a colostomy. Any other ideas on controlling the sweats would be appreciated.  

I also wondered if you know of any support groups for sci injury survivors in the Portland, OR area.

Answer
I would avoid a colostomy if possible.  In reading the description of your problem, two things come to mind that might be helpful.  First, try eating more vegetables and fruits because this is the important fiber that helps move things through the colon.  Second, drink more water to help keep the stool softer and more moist.  This will also help replenish the fluid lost through sweating.  Having enough fiber and fluid in your digestive system can work wonders and can even reduce hemorrhoid problems.

Regarding support groups in Portland, I would contact Emanuel Hospital and ask someone in the Social Work department.  I live in the Portland area but I don't know of any support groups personally.

Thank you for your question, Patrick.  I hope that my answer was helpful.

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