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Fibromyalgia, MS...or other?
9/23 17:22:14

Question
I have had symptoms for some 6 months following a bad flu episode. My muscles (mainly legs) become fatigued easily and sore the day after, stiff with tendon pain (when pushed) that comes and goes around major joints too. I havent been getting deep sleep and recently some tingling in my left foot. The more symptoms I notice the worse the anxiety gets. I dont seem to have the 11 points of pain for fibro-myalgia. The Neurologist referred me to a Rheumatologist  - w/negative RF test, waiting on ANA tests. I really dont know what to do next.

Answer
I understand your anxiety - nothing is more frightening than knowing something is wrong but having no explanation for it.  The problem is, you've just begun the search for an answer while your mind is leaping way ahead.  This is perfectly understandable, but there's more you can do than just "worry."  

How about focusing your concern on journaling your symptoms so that as you and your doc continue to test and explore, you can give her/him precise information on what's happening when?  It may make a difference whether you're feeling pain during the day or during the night, how long the pain remains after activity, and how much or what type of activity causes it.  Also, is it consistent or intermittent?  Getting worse, about the same, or up and down?  Do you try any medication for the pain, or non-medical treatments like heat?  How does it help (or not?)  Note the time of day and what activity your were doing just before.  Add some descriptive info on your mental state, too, including whether or not you're feeling tired.  It may make a difference if you're "very tired" in the morning or "somewhat sleepy" in the evening.

Using the computer for this is great, but you can also just jot things down during the day in a notebook, then take it with you to your next appointment so that when your doc asks, "How have you been doing?" you can give specific information.  You can use this notebook for questions you may have for your doc, too.  It's so easy to forget when you get into that little room and s/he takes over the questioning.  Then, on the way home, you think of all those things you wanted to ask.

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