Question
QUESTION: Hi.  I'm 42 and have recently been diagnosed with EDS.  What a relief to finally know what all my problems stem from; however, my GP, although aware of the syndrome, does not have any extensive knowledge in the area.  He was not the one who diagnosed me; he sent me to a rheumatologist thinking I might have an auto-immune disorder.  Anyway, I saw a woman posted a similar Q re: an EDS dr. in the Phoenix area back in 2009.  You mentioned you had a friend in Phx who was out of town, but you thought she liked a Dr. Marsh.  You said you'd get back with the name of the dr. after your friend got back.  Anyway, I didn't see your follow-up answer, so I am asking the same question.  Sorry to duplicate.  Thank you in advance, and thank you so much for providing this service!

ANSWER: Shannon,

Here is the contact info for Dr. Marsh - 480-585-5325. Mention a referral from Chris Phillips when making an appointment.

---------- FOLLOW-UP ----------

QUESTION: I just called Dr. Marsh' office, and I just wanted to make you and others in the Phoenix area aware that Dr. Marsh is a GP with no special knowledge or expertise in EDS.  When, and if, I find an EDS dr. in the Phx area, I will repost, so you have this info.  Thank you!

Answer
The problem with EDS is that there aren't really many "experts" or specialists in EDS.  There are a few, but you have to deal with long waiting lists for appointments and travel across country to see them.  Your best bet is usually to find a doctor who is willing to learn and listen or, if you are lucky, someone who has had a patient or two with EDS to learn from before.