Question
hello, i have eds iv and am considering applying for disability. im 28 years old and have no clue what to do. if you can help i would appreciate it. thanks.

Answer
Hi Gregory,

I have not personally applied for SSDI, so I am not an expert in this aspect of dealing with EDS.  I do know several people who have applied for SSDI with EDS, or are currently in the process of applying.  Many of those individuals are on the CEDA Email List on Yahoogroups and can be reached there http://health.groups.yahoo.com/group/ceda/  If you would like, I can also put you in touch with people directly if you send me your email address.

For general information on applying for SSDI, check out http://www.ssa.gov/disability/

-Barb
[email protected]